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Sunday, September 15, 2013

doin' this


Friday afternoon, I heard back from my nurse at CCRM, sweet pea. 
{side note: A few weeks ago, I got a call from sweet pea informing me that my previous nurse was no longer with the clinic and we'd been reassigned to her. What a relief!
My last nurse was not very compassionate. But worse of all, she appeared to hate her job. She didn't seem like she cared one bit about her patients. In contrast, sweet pea is so nice and takes the time to listen and ask questions. She ended up changing my protocol to start my ganirelix sooner in case my period came early. It did. Without that adjustment, I would've only gotten one shot instead of the three that was recommended. 
So back to Friday...this is what sweet pea had to say about my suppression check.

1. Maybe they're hiding. 
Sometimes follicles don't show up until after you start stims so the doc wasn't worried about how few were showing up in the ultrasound.

2. Freeze all...no prob.
My cycle would only be cancelled due to the thick lining if I were doing a fresh cycle. But since we're doing CCS testing and freezing all of our embryos, there is no problem moving forward. 

3. Genuine concern
A's fever bothered her the most. She said that sperm can be really sensitive to heat. In the past, she had a patient with a fever for one day. When he came in to give his sample, there wasn't a single swimmer alive. They were all dead. Gasp! Dead sperm is no good.

We managed hubby's fever with tylenol on Friday. And fortunately, the man upstairs might be looking out for us because he started feeling better the next day. He's pretty much 100% now. So it's game on...we were cleared to proceed with the cycle. 

We started stims on Saturday. 
2 vials of Menopur every morning
300 IU Follistim + .4 CCs Saizen + Dexamethasone every night

A always asks me what each of the drugs are supposed to do. Stims are easy. Saizen is a human growth hormone used on some patients that have with DOR to increase oocyte quality. But we weren't sure about the dex. Dr. Google to the rescue....or not.

We found this article. 
We were pretty much freaked out. Anyone know why this drug is a part of the IVF protocol? A is concerned that a reproductive endocrinologist's job is to get their patients pregnant. Whatever that takes. And what it takes may be to the detriment of the patient's overall health. He's worried. And if I spend too much time thinking about all of the sh*t I'm pumping into my body...I am too. But what can you do? After much worrying and discussion, I took the dex pill anyways. 
Leap of faith. 

But it just makes you wonder.


35 comments:

Liz Pisano said...

Where did you end up getting saizen from? I'm diagnosed with DOR as well and dr mentioned it should we cycle again but it sounded expensive. How many days will they have you take it? I wish you lots of luck and hope you have a super, amazing cycle!!

jAllen said...

The LVN at my RE's office has the same demenour as your old nurse. She just seems to have no interest in her job and is very indifferent to her patients. It makes such a difference to have someone who seems genuinely concerned and interested in your success! Best wishes with your cycle!

Emily said...

Glad things are working out better now.

As for the dex article. I just read that last week as well as it really took me back. I actually have a Skype consult set up with Dr. Sher for Oct.1st and you know I'm going to ask him about that, esp. since he was quoted. I have the same exact concerns. I don't need some doctor getting me pregnant at ALL costs ya know! I do think there should be more concern if it's used past the + hCG vs. just during the IVF though.

Amber said...

I'm glad you got a new nurse that is much more friendly and helpful. I know nothing about the Dex med or the Saizen. Those are two meds that were never prescribed in either of my cycles. Even though the RE's job is to get you pregnant, there are still regulations and I would think there would be a major problem if they were giving you something that knowingly sacrificed your health down the road. I would take that leap of faith as well, but then again, I probably trust doctors too much. I wish you the best of luck and look forward to getting your updates!

Finley S said...

Hi, New to your blog and I just love your honesty in a hard situation - know your pain x

I think its a strange one with the pills and though we haven't started IVF yet, I think its a matter of, how far you are willing to go to make it happen. And the thing is you've taken the IVF step because you know the risks and will do what it takes to have a child.

Of course its vital to know what's going into your body and how it affects your body, but I know for me, that I will do whatever it takes to have a child and knowing the risks of IVF is part of that. Along with lots and lots of pray!!!

I really admire your honesty with this and looking forward to reading through more of your blogs!

Well-intentioned said...

Hi DofD! Yay getting to the stims phase. One step closer!! So from my general understanding dexamethasone is a steroid and it basically reduces the immune/inflammatory response. Even if you have no known immune or miscarriage history they put most patients on this because it causes no harm, is inexpensive, and can provide a little insurance.

One article described it this way: "The hunch is that some women who seek out IVF have immune problems that cause their bodies to reject pregnancies. If dexamethasone suppresses a woman's immune system, maybe it will help her maintain a pregnancy."

Hope that helps! :o)

Catherine said...

So glad his fever went away! I love reading your updates as I too have DOR and will begin IVF as soon as my levels are at zero. (I've mentioned this before) And YAY for a new "sweet pea"!

Amanda said...

Yea for a green light! Wishing you all the best! I'm glad your nurse is so helpful... it can make all the difference! Praying for you Jessah!

Erika said...

Good grief-- I didn't know that a fever could be so detrimental to the swimmers! Crazy! But maybe the effects are short-term (only noticeable around the time of the fever...not months out)? I'm glad that A's is better. And that article about dex--SCARY!!!!

Anonymous said...

When I cycled at CCRM they told me that the Dex helps to keep the male hormones down which also helps with egg quality. Best wishes for your cycle!!!

Just T said...

I was very excited to read this today. Hoping for a wonderful outcome on this cycle and have everything crossed for you!

Anonymous said...

I used dex with my IVF pregnancy and my son is perfectly healthy. I do have known AI issues.

Regardless, if you don't plan to transfer this cycle, maybe it is a drug you can leave out of this protocol. Definitely ask your nurse, that's what she is there for.

I'm following and wishing you MUCH success. Hang in there, this is HARD!

Gypsy Mama said...

I took Dex for IVF #1, but if I had read that article I probably wouldn't have... You might feel better after discussing it with your Dr.

shay said...

Glad you got the green light and that hubby is feeling better!

I try not to think about all the hormones and crap we are putting into our bodies either. It's scary to think about...

bellehavendrive said...

First of all, yay for sweet pea! I'm sooo glad everything worked out. I am emailing you a question about Saizen. I don't know if your email is here, but I'm going to look for it now. :)

Laura Crosby said...

So glad you guys got a bit of good news and are able to move forard! Good luck! xoxo

Amie said...

So glad to hear you are moving forward. Sending many prayers your way :) I have to make myself resist looking medical stuff up on google lol

Ashley said...

So glad things are moving forward and that you are reassured with most of the issues. I never took Dex, so I am not sure about it, but I'm sure you could ask. I personally was originally afraid of hormone therapy and the risks that are involved, but it came down to, what other choice did I have. But I'd still ask about it. Soo glad that your hubby is feeling better too!!

Sadie said...

All these drugs make me worried too, and to be honest, I try not the think too much about it. I hope this will be your one and only time on the dex pills anyway, because you'll be successful this cycle! I'm so glad everything worked out!

Whitney B. said...

So excited for you that everything is lining up. Fevers are definitely scary for male numbers, we know that all too well. Happy y'all are on this path and hoping, praying, fingers double crossed for you.

InLimbo said...

Wow. Good luck with this cycle! Your post about dex certainly made me think. Have you talked with your doctors or done testing for possible immunity issues? I've had four failed IVF cycles where everything has gone well during the treatments (except no pregnancy) so I've started to wonder whether there might be an implantation/immune issue, but I know many doctors don't really believe in this. I'd be really curious to hear what your experience with this has been. Thanks!

Kelly said...

Not sure if this makes you feel better but my dr said he will put me on steroids, I think he said Dex, for our FET. We got a BFP but I had a cp later that week. I hadn't really done any research on Dex so I will be asking some questions at my next appt. Good luck!

Chevis Harris said...

Good Luck!

Caroline said...

We walk by faith, not by sight! 2 Corinthians 5:7 - believing with you! So glad hubs is better!

muddyfeelings said...

I have so much in common with you. I live in Norcal too, cycling at CCRM for the first time with Dr. Surrey (our second IVF though). I start middle of October and I'm on the EPP protocol (is that the same as yours?). Our nurse quit recently too and the new one's ridiculously sweet, so I suspect we might be talking about the same people! I'll be following your journey and thinking good thoughts for you. Feel free to connect if you'd like!
My blog: http://babystepstobump.wordpress.com

JoJo said...

I have to say J is the same way when it comes to medication. He always reads about them and tells me I don't have to go through with all this if I don't want to. I think it's sweet when a man cares about his wife's health. Best of luck Jessah, I'm glad they gave u the go ahead to start stimming.

Cristy said...

Horray for moving forward! That's wonderful news.

Regarding dexamethasone, I've taken it during my cycles to aid with implantation. I think it's worthwhile shooting Sweet Pea an email about it.

Fingers crossed!!!

Aramis said...

I've never heard of dex, but that article was scary! Perhaps ask your RE about it? I'm glad things are going ahead, and I'm crossing everything I have that it works out for you! I had a few follicles that appeared out of nowhere this cycle, so it can happen!

Marcy said...

Here's to hoping for hiding eggs and medicines that create miracles.

Mrs. E said...

I'm so glad you got the go ahead! Sweet Pea sounds a million times better than your other nurse, and I hope it's a positive sign of things to come. Sending lots of come-out-of-hiding follicle dust your way!

Aubrey said...

Uh oh.... I took dex for two cycles! Glad you're on your way and that you have a sweet pea looking out for you :)

Kelly Z said...

Fingers crossed for that everything goes well for you!

Holly said...

Yes! I love the "game on" attitude! Its crazy the power/adrenaline we can feel when its time to go to battle!! Praying for you guy!!

Mrs B. said...

I am so glad you can go head! I agree the Dexamethasone is scary, but I do think it is for a greater cause (I hope). Love the socks too, I need to find a nice colourful pair for this cycle! Lucky socks. Hehehe

Em said...

Stressful about A's fever! So glad he's feeling better and that you get to move forward.

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