if you say you have cancer, people understand what that means.
if you stay home from work with a migraine, your boss comprehends what ails you.
if you say you have endometriosis, you see a blank stare looking back at you.
how do you tell people, in a way that they can easily understand, i have endometrial cells that grow outside of my uterus? how do you tell them that this causes crippling menstrual pain, fatigue and infertility in a casual conversation? how do you get them to understand that it is not "just cramps" or "female issues" that everyone experiences?
i hide my pain most of the time. the pain that so many others don't understand. or i tell people my stomach is upset...something they can wrap their arms around.
why do i have to do this? why aren't people aware? why don't they understand? why haven't they heard of this disease that affects an estimated 176 million girls and women worldwide?
why is it that many doctors don't even understand this disease? they continue to misdiagnose or fail to diagnose it for an average of eight years. imagine knowing something is wrong with your body and telling your doctor...only to be told "it's nothing" or being misdiagnosed over and over again.
endometriosis is common. it may even be genetic. but no one ever talks about it. why is the cause unknown? why is there no cure? i'm expected to suffer through the symptoms or "treat" (which means mask) them until i ultimately get a full hysterectomy - removing my womb, fallopian tubes and both ovaries...basically everything that makes me a woman. i'm also at an increased risk of developing ovarian cancer. sigh.
there are too many people suffering for us to just turn a blind eye.
can someone please pay attention to us?
my body is a battleground.
and right now endo is winning.
march is endometriosis awareness month.
so i can't keep quiet. i must do my part to spread the word about all things related to endo.
below are some additional resources, if you think you or someone you know may have this disease...